I haven’t posted in a long time. Life gets busy when you’re busy trying to be a parent, a partner, a lover (not a fighter), a photographer, and someone who tries to do the right thing.
Firstly, I have some expected good/relieving news. Cee and I are engaged! It started out with Cee telling me that she had a surprise for me midway through a week in October. I had a feeling that surprise might have been an engagement ring seeing as our first year anniversary together was fast approaching on the horizon. I had no one to look after the youngest child, so I had to let her tag along with me when I went to the jewelers. Cee and I had already picked out the ring that she wanted months earlier so I knew exactly what to pick. In eager excitement, I bought the ring, had it shined up and kept it in the box. I told the youngest that she’d have to keep a secret until I asked her mom to marry me.
That night at dinner, the youngest blurted out, “We went ring shopping. She bought you a ring,” to Cee. I was so upset. I realized my mistake in taking her ring shopping with me but I hadn’t really had another opportunity to get the ring before our anniversary, so I’d had no choice really.
Cee took it well and smiled and tried to calm me down, telling me “She’s only 6.” I recognized that that was true and that there were worse things that could have been blurted out. This was good news that needed to be shared. So on our anniversary, Cee surprised me with several gifts and cards. She had spent a day making a scrap book of all our memories of a year together with pictures and quotes that she’d made with the oldest child. Tears started falling as I cried happy tears while opening it. It made me so happy that she’d spent time and thought and put it into a book of memories of our year together.
At the end of the gifts, she pulled out a small ring box, and proposed to me. I reached in return to grab the ring box I’d bought for her. We both slid each other’s rings on one another. I bought Cee a sapphire surrounded in diamonds set in white gold. I have a green Peridot set in silver. They both suit us individually so well.
I couldn’t have been happier. I didn’t want the night to end as we dined at the Italian eatery sharing stories and memories of our year together.
Secondly, there is some other good/relieving news about my scattered thinking. I have been seeing my doctor for a while telling him my symptoms, as has Cee. I advocated on going to get tested to see if I qualified for a diagnosis to explain my scattered thinking, disorganization, impulsivity and inattention. I was referred to a psychologist who put me through a slew of tests. I took a personality assessment, an impulsivity computer test, an IQ test and some memory tests. Cee was to fill out an assessment on my impulsivity and scattered mind. I scored quite high on those both by a self assessment and by hers. I scored high on the impulsivity (stupid X on the screen!) test. I scored 115 on the IQ test but scored low in working memory and processing speed.
Basically the tests indicated that I have Adult ADHD-PI which means that I have Inattentive ADHD. I’ve had these symptoms all my life, but it’s only been the last few years that I’ve realized that they have been getting in the way of living to my fullest potential. So now that I’ve been diagnosed, I’ve felt relief knowing I’m not stupid, just that i’m wired differently. I’ve started treatment and my home and work life have definitely improved now that I can be more present.
Now… the bad news. The sky has started to darken and it has nothing to do with the winter season. I am afraid that the love story that is being written by the universe has started to enter a darker period (even if only temporarily).
A month ago, Cee has started to develop some strange symptoms. She’d had some fuzzy spots start to appear and darken her vision in her right eye. She hadn’t told me for fear that I’d (possibly rightfully so), freak out. When she finally told me, I told her to get to the doctor immediately. The next day while I was at work the doctor immediately referred her to an ophthalmologist, someone who specializes in eye health. By the weekend of that first week, Cee had to go to the hospital every day for three consecutive days to get IV steroids pumped through her body in an effort to regain her sight. Her diagnosis was optic neuritis which means that the myelin sheath around the optic nerve in the eye has been eaten away and/or isn’t firing properly. Optic neuritis is one of the first possible symptoms of Multiple Sclerosis.
I had to watch Cee take oral Prednisone (steroids) after her three days of IV steroids were over. She walked around with pitting edema (fluid filled feet, legs, and hips). It looked so painful. She didn’t feel beautiful anymore. That was so hard to see.
Her symptoms seemed to get better with her vision returning partially in her right eye. About a week ago she started experiencing some numbness in her right side along with migraine headaches. She had to go to emerg and listen to a doctor talk about MS, and testing that they would likely do. She has to go for an MRI soon to see if there are any visible lesions on her brain and spinal cord. She was prescribed an old antidepressant that also blocks nerve pain because tylenol and advil didn’t even touch the migraine headaches.
Cee’s friends have been great. They have loved and supported us unconditionally. My few friends seem few and far between. It seems like they’re tired of hearing bad news so they simply turn their phones off if I need to vent or need some love and support. Perhaps the age gap between Cee’s friends and mine is too great. Maybe friends my age are too busy living their happier lives while Cee and I face a dark cloud upon the horizon. I will do my best to stuff my anger and numb feelings away, and learn to cry more often. I always feel better after crying, but sometimes I just can’t seem to do it. I hope we make it out of this cloud soon and into a few rays of sunshine, even if the dreaded diagnosis is MS after all. I have to learn to live, one day at a time. We only have one day at a time. We have to live for the now and take steps to make sure the future is as bright as possible.